Showing posts with label malignant. Show all posts
Showing posts with label malignant. Show all posts

Thursday, 16 January 2025

A benign review of a malignant past

The shifting feasts of consulting

This was my third outing of the week after church on Sunday and the office on Tuesday. I had a rescheduled appointment from December that I attended yesterday. It was my usual biannual checkup, which has shifted from the April/October cycle to a January/July cycle in three years.

Once I realised, I would not be able to attend the early December appointment because I would be out of the country, I called to postpone the appointment and reschedule it to mid-January. I ensure I never miss my hospital appointments or consultations as it deprives others of time and audience with scarce medical personnel.

A miscommunication between us some 18 months ago meant I never received my expected scheduling for May, and we fell into a June/December cycle that only happened once. Besides rescheduling, I was promptly given a prescription to make up for the additional time.

Let’s keep to what we discussed

For this consultation, I had a few issues to discuss, the main one being the unfortunate mismanagement of information that I should not have received until I had met the consultant involved in that area of investigation and diagnosis. The computerisation of personal medical records meant that a certain diagnosis ended up in my clinic notes that the person I met should have redacted before forwarding to my doctor and I.

Blog - The note that crept in

The sinking feeling of reading a diagnosis of adenocarcinoma of prostate over a week before my scheduled appointment with the consultant urologist was as earth-shattering as it was a humbling reminder of one’s mortality. When I remonstrated with the doctor, he offered to redact the diagnosis, but what good was bolting the doors after the horses had bolted?

Meeting with the chief consultant of the team that had assumed my care for over a decade and she for about 8 years, she immediately understood the issue.

She said she would raise an incident with the multidisciplinary teams to ensure that they are aware of what information gets passed to the patient; that it is centred on their particular consultations; and that the more interested patients can assess seemingly hidden interdepartmental communications to read the chatter pertaining to them.

A malignant test of the benign

For me, what I learnt was the difference between the definition of malignant to the layperson and the medical establishment. When I read malignant adenocarcinoma of the prostate in interdepartmental communications, I read it as a qualifier of the type of cancer, something rampaging and very likely to cause death.

To the medical eye, malignant always means cancer regardless of stage or metastasis. The absence of cancer in the presence of a growth or tumour will be considered benign. [Medical News Today: What are the different types of tumour?]

My consultant patiently explained the terms fully to enhance my understanding. Other issues in my notes were from the perspective of the person I saw. Any similarities would suggest a lazy engagement, as situations and circumstances do change between visits.

All good and nice

We discussed the readings of my blood tests, and the need for new assays, though this time without a urine sample and at the end of my allotted time with a medical student present, I was handed on to the phlebotomist who had no problem drawing three vials of blood before I was sent on my way to collect my renewed prescription and I made my way home.

In all, the consultation was pleasant, and the typical readings were within normal range, it is likely I have lost a centimetre in height, and the physiotherapy to address issues in my spine will not commence until all the other medical issues are resolved.

Thursday, 11 July 2024

Men's things - XII

Gathering my thoughts

There is much to write about, the last couple of weeks, the continuation of my experience with Men’s things, the change of government in the UK, and the glorious two weeks I got to spend with Brian in the city we both love, Cape Town.

This blog however will be dedicated to the issue of Men’s things as my appreciation of the situation has both been given a sense of triumphalism borne of faith as much as putting into a hermetically sealed containment the foreboding and fear that greets cancer invading your body.

What I was not meant to see

Poring over and through the NHS app, there was a cache of documents that contained what I would think were exchanges about discovery and diagnosis between medical personnel that the uncurious would probably never have accessed.

I open each of the recently uploaded documents. While the indiscretion of the medical establishment meant I learnt of a diagnosis of adenocarcinoma of the prostate before I was officially informed, when I eventually met the urology consultant who also conducted the biopsy of my prostate gland, I was left with the impression that things need to be done. Still, I had time to consider the options and probabilities.

Blog - The note that crept in

Yet, appointments and engagements were coming in thick and fast despite my having intimated I was going away on holiday for just over two weeks. Within two days I had a phone call to set up an appointment at The Christie Hospital and by the time I got home in the evening, there was a letter confirming the appointment in my mailbox.

The word they never spoke

There was an inordinate urgency to the activities that concerned me. The cache of documents contained one word no one spoke to me, and I think out of some bedside manner of reducing the sense of alarm at relating their discovery to me. I was left reeling halfway through my holiday when I saw the word malignant, and there is nothing benign about it.

Today, I attended my first appointment at The Christie Hospital to discuss one of the treatment options with a consultant who would perform a Robot-Assisted Laparoscopic Prostatectomy (RALP), if I should choose that pathway after a further meeting about the radiotherapy option which I currently have quite limited information about.

The consultant was in no doubt about malignancy in the intermediate range with good outcomes even as the possible complications after a robotic procedure do not present a pleasant consideration in the immediate to near term.

The core consideration with trenchant immunosuppression is this needs to be dealt with sooner rather than later. A lifesaving matter for which one might be persuaded to pay less attention to masculinity, manliness, or virility for the sake of living.

Phew! That was daunting

His patter was confident, experienced, and competent with every indication that he plans to save the vicissitudes of the plumbing and mechanisms of that environment, but only after he has had the opportunity to look in there. It was daunting as much as it was interesting. He answered my questions in detail and addressed my concerns frankly.

Obviously, I still need to review everything I was told to understand what it entails; whether I am prepared for this ordeal and what it portends. Whilst understanding the seriousness of the condition I also believe that there is every possibility I do not have to go under the knife but have a medically confirmed miracle of healing.

What is critical is for all I have learnt about prostate cancer, I do not choose anything out of fear, anxiety, or the pressure to act. I need to keep my faith and belief strong; focused on the process and outcomes desired. It is the only mindset that guarantees that whatever happens, I will look back on this with a great testimony and a better story. By His stripes, I am healed. [BibleHub: Matthew 8:17, Isaiah 53:5, 1 Peter 2:24]

Blog - Men's things

Blog - Men's things - II

Blog - Men's things - III

Blog - Men's things - IV

Blog - Men's things - V

Blog - Men's things - VI

Blog - Men's things - VII

Blog - Men's things - VIII

Blog - Men's things - IX

Blog - Men's things - X

Blog - Men's things - XI