My will for the pills
When I think about
it, I have what I might call a health-year, the biannual visits to see the
consultant in charge of my HIV management which has been under control with
antiretroviral drugs (ARVs)
for just over 12 years with two changes of medication that I handle very well.
Until I fell
seriously ill in 2009, one of my concerns about what to do was around the pill
burden, too many experiences and stories had given me the idea that ARVs were
difficult to store, you took many pills several times a day and the side
effects could be unbearable.
I guess by the time I
left the hospital with a medication trailer of pills to be taken 8-times, 6-times, 4-times,
thrice, twice, and once daily, along with the chemotherapy every three weeks, I
knew my life was totally changed and would change radically if I were to keep
alive by adhering to that pill regime.
Adapting fine to routine
With time, I was left
with ARVs of just 3-pills to be taken once a day, and an antiviral prophylactic
drug to be taken twice daily. On later chemotherapy sessions, I needed an anti-emetic
to help keep the food in. One large pill taken an hour before the session and
the two smaller pills for one each of the next two days.
The ARVs affected the
bowel movements that I was put on a single-pill medication that I have been on
since May 2010 apart from the change in late 2018 that lasted 6 weeks that did
not work for me, I returned to the medication I was having rather than try
something new. My pills are a nightly elevenses, they work for me, I have had
an undetectable
viral load for over 12 years and my CD4 count has been
increasing appreciably. Those are the markers for the state of my health.
Good, but not ready
Last week, it was
announced that the taking of daily ARVs can be replaced with injections taken
every two months, or 6-times a year. Two injections, apparently to help many
who have problems with the daily pill taking and the disruption to their lives.
I do appreciate the usefulness and need for this, though I seem to have adapted
when to the daily pills, I do not think I am mentally predisposed to this possible
change to bi-monthly injections. [BBC News: First long-acting
injection for HIV approved]
I get my prescription
every 6 months for a 6-month run, and my day is planned around ensuring I take
my pills as required, my weekly pill box laid out every Sunday and kept track
of as diligently as possible, I might just be averse to change after having
perfected this routine. Altogether, I doubt I have missed my medication up to a
dozen times since the 30th of September 2009.
Now, I might well
consider an HIV vaccine if that becomes available as a yearly jab taken like a
flu jab that would have the efficacy of keeping the viral load undetectable and
the virus completely at bay. Until then, whilst I do not have the numbers, I am
happy with my pills.
