In Telling: The spirit that sustains

Strength from within

I sometimes think about the effects of illness and how vulnerability and infirmity change your outlook, your inadequacies are exposed in ways you can never have been prepared for, and you are left with just your spirit to sustain you through it all.

In many ways, you cannot account from further than the next tick of the clock, for the pain, you can only have so much medication to dull it without putting you into a stupor because you still need to function in some way.

Then you wonder about the incredible resilience of our being, for whether we survive or not, there is no accounting for the strength that we usually never know we had. It is like you are tested to the limit and then some, if your body can just tolerate what it is put to it, providence and fortune might give you a story to tell.

In the passage of time

I am humbled by my experience and then I think about the fact that when I went for the Spring booster the NHS website failed to provide adequate information for when I was registering, I am not considered in a vulnerable cohort of the immunosuppressed, because my CD4 count is not over double the minimum threshold, though I think my medical history should make me eligible.

Whether it is good or bad news is beside the point, what I cannot afford at any time is to contract the Coronavirus and so, I still wear my face mask in enclosed places, avoid crowded spaces, and take necessary precautions. That is just how life is today.

A story to tell

I was chatting to my best friend last week and he asked that I consider writing about serious illness, how people face it, and how we try to get beneficial outcomes against the onslaught of the medical establishment which may not always be acting in our favour, especially when the experts are too arrogant and self-important to listen to our own perspective of what we are going through and what it is we need.

I am not quite sure of how this would go, but I can only write about my own experience and I hope those who read my story might find something of help or usefulness, I guess that is just what I will do.